Skip to main content

i'm back in the cancer again

On Friday afternoon, I got the call...

You've got cancer.

I find myself again - sucked into the world of cancer. Surprise... it's back! I guess this was one way to get me back to update my blog!

Yes, all those doctors who thought I was being a giant pain in their butt and didn't know what I was talking about when I push and argued to get the biopsy done... well, I get to say "I told you so." I wish it felt better to say, but I was really hoping for I told you I had that weird autoimmune issue (I was thinking lupus... but we will wait on that one).

And for those who don't realize how hard I had to advocate to get the biopsy, check out my three blog entries before this one which has a detailed explanation of how I have had to deal with doctors all saying they didn't think I had anything wrong with me - and it was not cancer or breast cancer. It is also important because my self-advocacy and persistence may have actually saved my life.

Let's get into what we know & what we don't:

I have Breast Cancer again, but not like my first Breast Cancer. I have a whole new Breast Cancer. Yep, that is a new one for me. I have heard of Mets, Secondary, & Recurrence Cancers - I was told by doctors (10 years ago when I started my 1st cancer journey), when it comes back it usually comes back with the same feeders.

My original cancer was Estrogen +, Progesterone +, and HER2 -. That basically means my hormones were feeding the cancer. 

This time I am Estrogen -, Progesterone -, and we aren't sure about HER2 yet. Basically, that test came up a level 2 which means it may or may not be + or -. So, they are sending off my tissue for additional tests. I won't know for 2 weeks... more waiting!

I have a completely different type of breast cancer in 2023 than I did in 2013.

If this couldn't get any odder... it does...

I do not have a mass or tumor. This is another area that stumps the doctors. They aren't sure where it came from - was it just my breast tissue that has it or did it start in the lymph nodes or do I have a mass the mammogram missed? This is not common. I am getting an MRI soon to find out if there is maybe a mass somewhere that is hidden away. So, this is a mystery.

What does all that mean?

I have a whole new primary breast cancer. I now have what is called - Multiple Primary Malignancies:

multiple primary malignancies, refer to two or more different primary cancers in the same patient occurring in the same or different organs or tissues

Of course it is rare... I can't do anything normal. 

Where do I go from here?

I can't start any treatment yet. Once I know if I am HER2 - or HER2 + I will know what type of chemotherapy will be most effective. I do know I am headed for a new cancer journey of chemotherapy, surgeries, and radiation. I will be visiting breast surgeons, oncologists, heart doctors, radiation oncologists, and a few more doctors I can't even think of right now. 

It means I get to start my cancer journey all over again...

Musical Reference for the Title: I'm Back in the Saddle Again by Aerosmith


  1. Thanks for sharing your journey Amy. I cannot even imagine what you are going through. Know that we live you❤️❤️❤️ cass


Post a Comment

Popular posts from this blog

More biopsies... where? down there?

Cancer survivors are always wondering and waiting to see if something is going to happen, so it is only natural to worry when something is "off". Then when something turns out to be abnormal more testing and follow-ups are needed. It seems like a continual wave of worries. Sometimes our worries turn out to be issues. Sometimes our worries turn out to be nothing. Either way, we are going to worry... it's just an issue of determining how much and when we should really worry. Finding out my endometrium lining was so thick meant I needed to get a biopsy. What's an Endometrial Biopsy? An endometrial biopsy is a medical procedure in which a small piece of tissue from the lining of the uterus (the endometrium) is removed for examination under a microscope. The removed tissue is examined for cancer or any other cell abnormalities.  Lucky me. Right?  Now I get to go back the GYN only a few days after my initial exa

So Long Lady Parts

I am very grateful hysterectomies have changed over the last few years. I do not have to undergo the invasive surgical procedures many women before me have endured, including longer recovery times. Now it is faster, safer, and easier to recover. Since I am always getting poked and prodded, it is comforting to think it will be easier and less painful. At this point, I have decided to get off my cancer medications, because I will have to get on a different kind after the hysterectomy, as I will be post-menopausal. I figure, I might as well get a few good weeks before having to take them again. What's a Robotic Hysterectomy (& Oophorectomy - ovaries removed)? During a robotic hysterectomy, your surgeon makes five small incisions in your abdomen to provide access for surgical tools. Through these incisions, your surgeon detaches your uterus, and for me, ovaries and fallopian tubes from surrounding tissues.   If you ever get a chance to watch one of th


I love fall, it is my favorite time of the year. Instead of fall colors, I am surrounded by pink. Everywhere I look I see breast cancer paraphernalia being marketed and displayed. Companies look charitable. Social media is ablaze. The world is turning pink. I live pink. It is not just a Pinktober thing. Breast cancer has infiltrated my life, it is here year round. Pinktober is a double-sided sword for me. On one side I am grateful to whatever it takes to get people motivated, involved, concerned, donating, caring, or active in the cancer community. Then there is the other side, the part that makes almost all breast cancer survivors cringe… the blatant misrepresentation and misuse of all things Pinktober. Ironically, the whole breast cancer awareness month was created by a drug company. October was labeled National Breast Cancer Awareness Month where pink ribbons and merchandise began being sold without any regard to education or awareness. Breast cancer activists, like the fight