almost news, with hidden Her2 results

So, I was still waiting on my Her2 results. And on a trip visiting colleges with my daughter. Yesterday, I had a not so awesome conversation with my Oncologist (which was really a sucky conversation). While I set it aside, I realized my Her2 results were really essential in my diagnosis. So, I was ready to find out what type of cancer I had.

With no news, all I could do was go on with our trip and spend time with my daughter. Of course, we both were hoping I would get a phone call during the day to let us know the results, but that didn't happen. However, we did not let it bother us. We had multiple schools to see and lots of fun to have.

From the the beautiful shores of Connecticut to the busy streets of New York City, my daughter and I had a blast! We drove and visited Yale, UConn, NYU, Columbia, Rutgers, and Princeton. Only a few of those colleges were really on her list, but we tried to drive by the others just to see what they were like since we were nearby. Plus, it was a great distraction.

Each stop gave me a break and time to check my medical patient portal, looking to see if anything has been updated. I kept thinking it will be up soon, but each time I looked - I kept seeing the same cancer diagnosis. Each glance left without any clarification on if I am Her2+ or Her2-. It was stressful, and there was nothing I could do.

After a busy day, we arrived at the hotel and got settled in. I happened to look at my medical patient port website for like the billionth time. I saw there was an addendum on my Pathology report. I clicked it. I waited.

My results were up - but I couldn't see them. While my portal lets me access my records, the Pathology section has been giving Error messages for weeks. I had sent the hospital a complaint - asking for it to be fixed - but I am anxiously realizing it is still not working.

Time for the Answer

I realize it is now 4:50 pm in Alabama, so I have to call now! It was so close to the doctor's office closing, I knew I would be lucky to get the results now. In a panic - I started calling my doctors. I even had my daughter trying to get through to the doctors and the hospital where I had the biopsy done.

1st Up

I called my Onc... guess what? My Onc was out of town and her nurses had already left for the day! It was almost comical... but it was also not funny. I have had such a bad overall experience with this Onc - it was just adding to the frustration. I left a detailed message... and realized it took too much time.

2nd Up

I called my Primary... guess what? The nurses were already gone for the day too because it is now 4:58 pm. So, I left a detailed message. Ugh!

So, I will have to wait until tomorrow to find out what my results are... even though the answer is hidden behind a giant Error message. With nothing left to do, my daughter and I decided we would go get dinner and enjoy the beauty that Princeton, NJ had to offer.

Sometimes You have to Let it Go from Frozen!

Comments

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