Check Out My Week:
I am going to need every bit of strength and energy I can find to get through this week. Originally, I was stubborn and said I could do the MD Anderson by myself... I reconsidered. While I could do, should I do it? I decided it was just too much for me while already in the throws of cancer treatment.
First off was the Oncologist. It is funny because I am excited when I learn something new... and no matter how many times you do this, each cancer gives you some lessons. Today, I learned something about my Port.
I am getting labs on Monday and treatment on Tuesday. Part of me didn't want to get poked in my port two days in a row (plus, the pokes coming from TX. However, the Lab Tech offered me a solution: to leave the Port IV in over night. This was news to me.
Here is what I learned: you can leave it in for up to a week, you can take it out yourself (and they will teach you how though I don't think I want to do that to myself), you can travel with it in, and another facility will not accept the Port IV line that they do not put in (while my lab tech told me the opposite - that MD Anderson could just use the one they put in, but my Oncologist told me that another medical facility will only accept one's they do, so I will get it out after treatment tomorrow). It makes sense when you think about it, but I was hopeful.
Here's what keeping the Port IV Line in Over Night looks like!
So, I had a brief glimmer of hope that this was going to be the only stuck with a needle one time. Instead, I would at least get today's labs and tomorrow's treatment with one punch, but MD Anderson would be more pokes. (The biggest issue with keeping the Port IV in overnight... is sleeping. It is uncomfortable.
I think my mind was also like what if this comes out or my cute mini-dachshund decides to chew on the line... he has been known to chew on cords before. Look at that face... you may be fooled by he's cute face... thinking he would never cause mayhem. Suckers!
Of course, nothing happened... however, knowing the Port goes straight to my heart makes a girl wonder, worry, & maybe even question. In the end, the Port was more uncomfortable than normal, but I slept and it was exactly the same for Tuesday's chemo. My thoughts on keeping it in: Convenient, but Uncomfortable.)
Back to Monday - if you haven't read my previous blog post a quick summary- I had a CT done on 10/5 and wasn't told the results until 10/17 by the NP who said I fluid around my left lung and heart that looked and suspected cancerous though doing a biopsy would probably collapse my lung and didn't think I could.
Now, in my current appointment, I was annoyed that the Oncologist told me I could get a biopsy of the suspicious fluid around my lungs and heart (medical names: Pleural Effusion, Pericardial Effusion, & Atelectasis). I asked if I could use a Interventional Radiation Group (like who I used to get my successful port) to do the biopsy. And his response felt like polar opposite than the NP visit last week, who told me doing a biopsy had the risk of collapsing my lung. The Oncologist acted like it was no big thing and I could have one if I wanted one. Then why did the NP not say the same thing last week when I asked?!? I have no idea why they are so disjointed, but now feels almost too late. I am leaving tomorrow to go to MD Anderson as soon as I finish chemo... so now I have to wait another week and set it up for when I get back. I still don't understand why no one called me or scheduled an appointment in now almost 3 weeks they had since they found the area on the CT! But, they didn't!!