Skip to main content

from chemo to pee to future rad things

Another week of doctor's appointments and my 2nd week of chemo is complete. I spent about 5-6 hours getting 2 chemotherapies (check me on picture to right, headed into treatment on a very early Tuesday morning). I am super proud of myself. It was a long day, and I have some issues with nausea so they have to push the chemotherapies a bit slower to help me out. And despite feeling pretty tired, right after chemo, I went to the Urologist... well actually his NP. I am not sure if the appointment was successful or not. Mainly, she just prescribed me medicine. 

Why? Who doesn't want to hear about my pee issues?!? Not that I hold back from the insanity that revolves around my life and cancer. Plus, I think it is good to share that cancer causes crazy side effects - so others know they are not alone. For me, this cancer go-round, I happen to have bladder issues. My ability to hold pee is going haywire... mainly at night. Because why not? It's not like I don't already have enough issues. Let's add either attempting to sleep-pee or an urgency that makes it hard to make it to the toilet. 

Of course, I was curious if it had anything to do with my original scan showing issues in the Mesentery and Iliad areas. However, no doctor seems that concerned about it, so I am hoping I shouldn't be too. I think every doctor has the attitude that if any extra things are cancer then the chemo will get it. That doesn't really make me feel better. I think I would rather know one way or another. Yet, it is more like every doctor here feels like they don't have to investigate issues, but just medicate them.

On Thursday, I went to my regularly scheduled pain management appointment. Then Friday, I met with the Radiation Oncologist. It was the same doctor I used 10 years ago. It is kind of funny since when he walked in the room I was like you still look so similar... only the wear-and-tear of a few years added on. I wondered if he felt the same way. 

I did like that he was the first doctor to actual say the name of my cancer out loud, "Occult Cancer." It has been odd no doctor has said a name of the type of cancer I have. I mean, they all have said breast cancer, but no one has said what type of breast cancer it is. The only way I knew what type it was (up until now) was from my own research online. No one really wanted to name it... but finally someone did. He did clarify it has nothing to do with the occult... but I like that it has a weird name... it makes it sound interesting at least!

After some general background medical talking and a breast exam, the Radiation Oncologist went over the basics of my treatment plan. It seems it will be similar to 10 years ago. Probably 7 weeks of radiation. It will focus on the lymph nodes and breast area. The main difference is I will have to take a deep breath and hold it in - it is at that point that the radiation will happen. The machine will be able to tell when I am expanding my lungs or not and know when to radiate me. The deep breaths will expand my lungs and open up the area to avoid radiating my heart. And that sounds necessary! I guess I didn't think about my heart - but it is on the left side which is where my cancer is this time. I am glad to have some general information about what he would do. It will also be good to compare it to what MD Anderson would do.

For now, another week with a ton of doctor's appointments is over. When I look ahead, next week is pretty slow in comparison but the very busy MD Anderson appointments is barely over a week away... and that week will be exhausting.

Also, here are my art journal drawings from while IN CHEMO TREATMENT and WEEK 2 - hope you enjoy!

In Chemo DrawingWeek 2 Chemo Drawing

And My Inspiration this Week:


(Side Note for Those with Bladder Issues - from cancer or not: Myrbetriq was prescribed to me - it says it is for an overactive bladder which is not necessarily my issue - however, it has helped me. It is expensive, $500-$600 every month, but there are other options out there that are effective for a lot less, $70/mo. If you are having issues with your bladder - ask about the various medication options available and hopefully it will help you too!)

Comments

Popular posts from this blog

giving your 16 year old scissors

New Traditions Losing my hair - it's going to happen. When I did this in 2013, I waited to cut my hair once I was further in treatment. I didn't want to do that again. I didn't want to do it while I felt sore and bad. This time, I wanted to get rid of my hair before treatment.  Since I will have now done this more than once, it can be considered a tradition: cancer haircuts by my kids . Last time I did this, the kids were 6 and 13. So, this time around my son (23) opted not to cut, but watched some.   However, my 16 year old daughter leapt at the opportunity to cut my hair. Even though 10 years have gone by, she had to adhere to a few basic rules. Basic Rules: 1. Do not cut my ears. 2. Do not cut your own hair. 3. Do not cut anyone else's hair. These rules still hold up and are the general agreement we make before I put scissors in my kid's hands to chop on my hair!  And the tradition isn't the same without going outside (weather permitting) and listening to our

happy birthday to me... almost

  Let's rewind a bit and start a few days before my birthday... I had my first cancer treatment day on October 3rd - check it out if you haven't read that blog post yet. Let's just think of it as an early birthday gift since my birthday is October 7th. Great gift, right?!? If I have to hear "Happy Early" or "Late Birthday" from another medical person, I might have to smack someone. Especially, since I have spent most of the weeks leading up to and after my birthday at a medical appointment regarding cancer. Not really loving my birthday this year. Let's just say, on my birthday, I woke up with a special chemo-side-effect-surprise at 2am. That fun surprise I will share later... Rewind a Few Days... Update But first, let's go to October 4th, the day after my grueling 8 hours of immunotherapy and two chemotherapies on the 3rd. I woke up swollen, red faced, and fevering, as well as feeling pretty crummy. I didn't have time to dwell on it since I

here i go again... on my own

  It's Time for Chemo #1 Today ended up being the longest day I've ever had in treatment... ever. I started at 8am and finished around 4-4:30pm. LONG day.  I fully support getting your port ready about 30 minutes before treatment (ignore the 5-15 min suggestion on the Lidocaine box - give yourself 30 minutes to allow for more time and more numbing). So, for me, I apply the Lidocaine over my port and put a small square of Saran Wrap over it right before leaving to go to treatment. It takes me about 30 mins to get to my treatment center, so it gives it time to work. The Lidocaine helps numb the area so the needle will not hurt as much when poked and the Saran Wrap keeps the Lidocaine on your skin and not on your clothes. When I arrive to the treatment center on chemo days, it starts with a bit of bloodwork in the lab. They have to make sure your bloodwork is good before giving you chemo. I have a port, so they just hook me up with the right type of IV needle, take my blood sample