So, it is my third week on chemo and it seemed like the perfect time to bring my daughter. It is early enough in treatment that I am not feeling as bad as I know I will. I know chemo treatment is cumulative, and I will feel worse as I go along. Plus, the Urologist gave me a copy of my CT results a few days ago. They didn't say anything and the Oncology group hasn't called me to say I have a problem. So, I'm going with the "no news if good news" theory.
I have warned my daughter multiple times about how boring going to treatment is... now she is about to find out what a boring long day of medical crap looks like. I warned her.I should have known it would be one of those days, since I was scheduled for an afternoon appointment. Treatment generally takes me at least 5 hours... so this seems like a bad scheduling issues before we even start. After getting my labs done and before treatment, I had a quick stop with the Nurse Practitioner (NP). I let her know some of my main issues: some shortness of breath (especially while walking), nerve issues, balance issues, exhaustion, and some general I feel like I am on chemo side effects. I expected to hear the general - yep, it sucks to be you response. Instead, she lets me know there was actually some issues found on my CT scan from 10/5. The CT showed the fluid around my left lung and heart looked suspicious.
When I asked the NP about doing a biopsy, she said that it would be too risky to do a biopsy as it would likely collapse my lung. Well that doesn't sound promising! Plus, I don't know when I could get in to do a biopsy or if I should risk the possibility of them collapsing my lung since I am headed to MD Anderson next week.
Later, I spent all week trying to get MD Anderson to schedule a biopsy of that fluid, but no one there responded to my calls or concerns regarding this. It is hard since I am not established with the doctors yet. I am very upset and frustrated at the entire situation, but there is only so much I can do.
Back to Daughter Chemo Day! One good thing, is I have a great relationship with my daughter. And she is used to these unexpected medical new/situations happening. So, it would take a lot to surprise her at this point (well, that goes for either of my kids or husband too). We put the semi-bad-news or news-that-isn't-news-news aside and spent time hanging out.