Episode CII - never get tired of trying
I might need some type of sedative before the week is over. Seriously... can I get a doctor to prescribe me something... and make it something strong!!!
Monday I had the rushed MRI at the location I did not want, for what? I never got a call about the appointment with the Neurologist. Since they rushed the process you would assume that an appointment would have been made. Right???
Because I had heard nothing I politely called the Cancer Center and asked about the appointment. They assured me they sent the referral over and someone would call me back. So, I waited a few more days....
I politely called again trying to find out if an appointment had been scheduled. Nope. I was told that I should be hearing directly from the Neurologist's office. So again, I waited. Then I called again. Third time is not a charm... it is irritating. I got a very abrupt you can call their office and bug them yourself response. Fine, I will!
So, I called the Neurologist's office to see if I can get an appointment. Guess what? There is no referral there... they have no idea who I am and why I am calling. I knew something was not right. Argh!!!
I immediately called the Cancer Center's office and they tried to assure me that I was wrong. I explained to them that it was over nine days, they just forgot to send the referral, and they made me rush my MRI. Just resend the thing! But what I was really thinking was someone messed up and totally forgot about me!!!!
The referral was properly sent and surprise, surprise, I was called by the next day. After much ado I finally have an appointment next week right before the holidays. I guess I should be glad I am getting in before the end of the year the way I am going!
Not to worry the Cancer Center called me back to reiterate that it was not their fault. A simple sorry would have been enough. Even though they did not send the referral and that it was basically lost in paperwork, it was not their fault. I still have not figured out who's fault it is then, but it really does not matter. I just wanted an appointment. I guess my constant calling that annoyed them was necessary. Ha... being annoying is sometimes good!
It has been difficult dealing with my physical limitations. I am sick of feeling bad and my body continually reacting to daily living. Post cancer living is definitely not what I was hoping it would be. Heck... it is down-right bothersome. I am past six month post-treatment... that means I should be feeling better... at least a little better!!! Give a girl a break!!!
For some people they end treatment and gain some normalcy. For others the post cancer side effects become life long struggles. From hormone therapy to lymphedema to whatever else ails you... life does not always bounce back afterwards.
However, with so many people asking I have to say something... or put it in terms people would understand. Being cured is not really an option for my type of cancer - which I understand and I am ok with. Basically, I am not looking to be cured... I just do not want to come back!
Even the people I know assume I am finished which means I am cured... I wish. That since I survived I should be planning some grand adventure to climb Mt Everest or something wickedly amazing to celebrate. Instead, I am just trying to make it through the grocery store without having moments of excruciating pain. I think Everest can wait!
Plus, we have more survivors now and more people willing to share their experiences… we are realizing that the survivorship does not mean it is over or easy or the cancer damage goes away. Even the statistics are showing an increase in unmet needs, click here to find out more.
In my head...
Thank goodness for self advocacy and a strong constitution. If I had not kept after the doctors I would probably still be sitting around waiting for an appointment. It never hurts to get involved and speak up for yourself. It is exhausting, frustrating, and enter-any-explicit-word annoying to fight for your health. But it is your health and you are worth fighting for. Time to get enter-any-explicit-word annoying!!!
Episode Reference:Louisa May Alcott's Little Women: