Skip to main content

i'm back in the cancer again

On Friday afternoon, I got the call...

You've got cancer.

I find myself again - sucked into the world of cancer. Surprise... it's back! I guess this was one way to get me back to update my blog!

Yes, all those doctors who thought I was being a giant pain in their butt and didn't know what I was talking about when I push and argued to get the biopsy done... well, I get to say "I told you so." I wish it felt better to say, but I was really hoping for I told you I had that weird autoimmune issue (I was thinking lupus... but we will wait on that one).

And for those who don't realize how hard I had to advocate to get the biopsy, check out my three blog entries before this one which has a detailed explanation of how I have had to deal with doctors all saying they didn't think I had anything wrong with me - and it was not cancer or breast cancer. It is also important because my self-advocacy and persistence may have actually saved my life.

Let's get into what we know & what we don't:

I have Breast Cancer again, but not like my first Breast Cancer. I have a whole new Breast Cancer. Yep, that is a new one for me. I have heard of Mets, Secondary, & Recurrence Cancers - I was told by doctors (10 years ago when I started my 1st cancer journey), when it comes back it usually comes back with the same feeders.

My original cancer was Estrogen +, Progesterone +, and HER2 -. That basically means my hormones were feeding the cancer. 

This time I am Estrogen -, Progesterone -, and we aren't sure about HER2 yet. Basically, that test came up a level 2 which means it may or may not be + or -. So, they are sending off my tissue for additional tests. I won't know for 2 weeks... more waiting!

I have a completely different type of breast cancer in 2023 than I did in 2013.

If this couldn't get any odder... it does...

I do not have a mass or tumor. This is another area that stumps the doctors. They aren't sure where it came from - was it just my breast tissue that has it or did it start in the lymph nodes or do I have a mass the mammogram missed? This is not common. I am getting an MRI soon to find out if there is maybe a mass somewhere that is hidden away. So, this is a mystery.

What does all that mean?

I have a whole new primary breast cancer. I now have what is called - Multiple Primary Malignancies:

multiple primary malignancies, refer to two or more different primary cancers in the same patient occurring in the same or different organs or tissues

Of course it is rare... I can't do anything normal. 

Where do I go from here?

I can't start any treatment yet. Once I know if I am HER2 - or HER2 + I will know what type of chemotherapy will be most effective. I do know I am headed for a new cancer journey of chemotherapy, surgeries, and radiation. I will be visiting breast surgeons, oncologists, heart doctors, radiation oncologists, and a few more doctors I can't even think of right now. 

It means I get to start my cancer journey all over again...

Musical Reference for the Title: I'm Back in the Saddle Again by Aerosmith


  1. Thanks for sharing your journey Amy. I cannot even imagine what you are going through. Know that we live you❤️❤️❤️ cass


Post a Comment

Popular posts from this blog

giving your 16 year old scissors

New Traditions Losing my hair - it's going to happen. When I did this in 2013, I waited to cut my hair once I was further in treatment. I didn't want to do that again. I didn't want to do it while I felt sore and bad. This time, I wanted to get rid of my hair before treatment.  Since I will have now done this more than once, it can be considered a tradition: cancer haircuts by my kids . Last time I did this, the kids were 6 and 13. So, this time around my son (23) opted not to cut, but watched some.   However, my 16 year old daughter leapt at the opportunity to cut my hair. Even though 10 years have gone by, she had to adhere to a few basic rules. Basic Rules: 1. Do not cut my ears. 2. Do not cut your own hair. 3. Do not cut anyone else's hair. These rules still hold up and are the general agreement we make before I put scissors in my kid's hands to chop on my hair!  And the tradition isn't the same without going outside (weather permitting) and listening to our

happy birthday to me... almost

  Let's rewind a bit and start a few days before my birthday... I had my first cancer treatment day on October 3rd - check it out if you haven't read that blog post yet. Let's just think of it as an early birthday gift since my birthday is October 7th. Great gift, right?!? If I have to hear "Happy Early" or "Late Birthday" from another medical person, I might have to smack someone. Especially, since I have spent most of the weeks leading up to and after my birthday at a medical appointment regarding cancer. Not really loving my birthday this year. Let's just say, on my birthday, I woke up with a special chemo-side-effect-surprise at 2am. That fun surprise I will share later... Rewind a Few Days... Update But first, let's go to October 4th, the day after my grueling 8 hours of immunotherapy and two chemotherapies on the 3rd. I woke up swollen, red faced, and fevering, as well as feeling pretty crummy. I didn't have time to dwell on it since I

here i go again... on my own

  It's Time for Chemo #1 Today ended up being the longest day I've ever had in treatment... ever. I started at 8am and finished around 4-4:30pm. LONG day.  I fully support getting your port ready about 30 minutes before treatment (ignore the 5-15 min suggestion on the Lidocaine box - give yourself 30 minutes to allow for more time and more numbing). So, for me, I apply the Lidocaine over my port and put a small square of Saran Wrap over it right before leaving to go to treatment. It takes me about 30 mins to get to my treatment center, so it gives it time to work. The Lidocaine helps numb the area so the needle will not hurt as much when poked and the Saran Wrap keeps the Lidocaine on your skin and not on your clothes. When I arrive to the treatment center on chemo days, it starts with a bit of bloodwork in the lab. They have to make sure your bloodwork is good before giving you chemo. I have a port, so they just hook me up with the right type of IV needle, take my blood sample