Skip to main content

Week 1 Update... let the AC begin!

Episode XV: Times like these




It was one week from my very first chemotherapy treatment. I have made it and am doing well. I am not nauseous. I am in only moderate discomfort. I am only moderately fatigued. Overall, a very tolerable and manageable week (with some help those first few days). So, here's just a general update:


1. Less insanely purple. The crazy huge bruise on my left arm ever since the Nuclear Stress Test is starting to get better...




2. Bonus! Apparently, I was allergic to the glue on the bandage tape used from my port surgery. My port stitches got removed and the bandage rash has almost gone away...




3. Sweet! I still have my fingernails and hair on my head and other places...




4. Bone Pain Go Away Come Again Another Day! The Neulasta shot made my bones produce insane amounts of white blood cells, so it caused intense pain for around a week. Seems like my bones and muscles are still sore, but it could be worse. The general bone pain was slowly going away, but when I walk it can act up. Also, pain will occur on the side I sleep on. Lots of rotating at night...





5. I got fire tongue!! My tongue burns like it was on fire, so I get to endure special "Magic Mouthwash" to help cure it. The mouthwash causes an immediate heat reaction to the mouth, hyping the fire feeling up, until after about 15 minutes it becomes numb. I haven't gotten mouth sores so, I guess it was a good thing. However, my tongue burns, even more with food and water and does not fully cool off...

"Come on baby light my fire" 
- The Doors lyrics from Light My Fire song Light My Fire



6. Speaking of my mouth! My taste buds were pretty much obliterated. There was always an odd taste in my mouth and it definitely affected the ways food tasted. Mostly, I wanted bland food which tend to be carbs - argh - ruining my "cancer diet" plan. Plus, the doctors don't want me to lose weight, what were they thinking - it was the one bonus to this thing...




7. Dang exercise! Why do I still want to be healthy? I have lost a lot of my energy and ability to exercise the way I like. My mind was making commitments my body could not keep! It was odd because my mind still wanted to go, but my body just couldn't. So, I kept after my pathetic, lousy 3 block walk down the neighborhood; 6 blocks including the return trip. However, it still remains my nemesis and a daily reminder of life and pain...




8. Man Brain! Not to insult my male friends and family, but I have gotten turned into a slow thinker. I called it "pregnancy brain", but my husband said I now know what it feels like to be a guy. I probably process conversations and think of things I should have said or done around a couple of hours after it happens. I am an easy target for two children!!! Either way, I have gotten mentally slower especially when tired (which tends to be a lot)...



In my head...


Overall, I cannot complain too much. That first week could have been so much worse. While there were moments, I have found that I am stronger than I believed. A positive outlook can be light in the darkest of places. Hanging on to humor and love.


"But it's no use going back to yesterday, because I was a different person then." 
- Alice from Lewis Carroll's Alice in Wonderland


Episode Reference: Times Like These, Foo Fighter song

Comments

Popular posts from this blog

my longest hardest day yet

Get ready boys and girls... today is a doozy. And a long post too! But before we begin on one of the toughest days I've ever done, let's recap. Mon: Irritating Onc day where I was not told about suspicious fluid around lung/heart in time to get a biopsy & I got contradicting info from his NP the week before.  Tues: Spending the morning getting Immunotherapy and 2 Chemotherapies before going straight to the airport to fly to Houston and enduring long rental car lines and afternoon heavy traffic. A few more checks off this weeks list... a few more to go: Now back to my Wednesday... the Humpday I would like to forget! So, after 8 hours of cancer treatment, flying, and travel in congested Houston the day before, I didn't have much rest because we had to start Wednesday early. My husband and I decided to walk to the medical center since our hotel was close. However, it was not necessarily the easiest or closest walk - tons of traffic, intersections, and some strange indivi...

chemo. travel. fly. travel. stop.

QUICK RECAP Monday was a let's check in with Oncologist - only to get annoyed that I was not told about suspicious fluid around lung/heart found on 10/5 CT before now, the Onc said I could get a biopsy when his NP told me I couldn't the week before, and now it was probably too late get the biopsy since it may be gone because we waited too long. And my official check-in pre-visit appointment phone call with MD Anderson. My Checklist at the Start of Tuesday: Still a Lot to Do! TUESDAY Today is going to be a loooonnnggg day! I started with an early morning chemotherapy time, getting to the facility while it was still dark outside, around 6:35am... It was weirdly silent... I was the only one in the building (except for a security guard) for a bit. I was actually concerned that my 6:45/7am scheduled time for chemotherapy was incorrect and just randomly sitting at the cancer center.  I was even there before the front desk check-in staff arrived. Normally, the place is packed. So, wh...

the red devil strikes again

My Second Battle with Chemotherapy They say what doesn’t kill you makes you stronger. But sometimes, it feels like the journey to strength comes with a hefty toll. Facing the “Red Devil” a second time, I was prepared for some of the more notorious side effects—hair loss being the most talked about—but I wasn’t quite prepared for the onslaught of additional challenges it would throw my way. As the clock ticked past midnight, signaling the dawn of a new day, I found myself wide awake, grappling with the weight of a familiar foe. This is my second time undergoing chemotherapy, and the dread of the "Red Devil" has once again become a part of my reality. For those fortunate enough to be unfamiliar, the "Red Devil" is a nickname given to the chemotherapy drug Doxorubicin, known for its potent and aggressive nature. Back in 2013, the first time I faced chemotherapy, I was filled with a mix of fear and hope. I clung to the belief that the treatment would work, that the side...